Report of early intervention: Follow-up of a baby with Prader-Willi Syndrome

Authors

  • Veronica Aparecida Pereira Universidade Federal da Grande Dourados
  • Olga Maria Piazentin Rolim Rodrigues Unesp - Bauru
  • Caroline Olsen Rodrigues Apolonio Universidade Federal da Grande Dourados
  • Luciene Antunes Barbosa Universidade Federal da Grande Dourados

DOI:

https://doi.org/10.4013/ctc.2016.91.02

Abstract

Prader-Willi Syndrome (PWS) has a genetic origin and its main features are: to experience hypotonia and endocrinal disorders, resulting in motor difficulties, obesity, cognitive deficits, hyperphagia and intellectual disabilities. Some studies have described physical and laboratorial exams for the diagnosis. However, there are few studies about interventions reporting an improvement of quality of life. This paper describes an early intervention program (EIP) applied to a baby diagnosed with PWS, from his 4th month of age to the 24th. The Inventário Portage Operacionalizado (Operationalized Portage Inventory) was used during EIP, showing its effectiveness regarding evaluation, planning and intervention. Results showed a satisfactory performance in four out of the five areas assessed, requiring specialized treatment in the field of Language. Good maternal adherence and responsivity were fundamental for the development of the process. Long-term care was efficient and showed the necessity of specific interventions.

Keywords: special education, Prader-Willi Syndrome, early intervention.

Author Biographies

Veronica Aparecida Pereira, Universidade Federal da Grande Dourados

Doutora em Educação Especial - UFSCar

Docente do Curso de Psicologia -Graduação e Pós Graduação em Psicologia
Universidade Federal da Grande Dourados

Área de atuação: Psicologia do Desenvolvimento Humano - Educação Especial

Olga Maria Piazentin Rolim Rodrigues, Unesp - Bauru

Livre Docente, Profa. Adjunta do Departamento de Psicologia - Pós-Graduação em Psicologia do Desenvolvimento e Aprendizagem - Faculdade de Ciências da Unesp - Bauru.

Caroline Olsen Rodrigues Apolonio, Universidade Federal da Grande Dourados

Acadêmica do Curso de Psicologia, Faculdade de Ciências Humanas -FCH- Universidade Federal da Grande Dourados

Luciene Antunes Barbosa, Universidade Federal da Grande Dourados

Acadêmica do Curso de Psicologia, Faculdade de Ciências Humanas -FCH- Universidade Federal da Grande Dourados

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Published

2015-11-12

Issue

Vol. 9 No. 1 (2016): Jan-Jun

Section

Articles

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